News and Notices

Listening to people with dementia and their carers

The Department of Health’s (DOH) listening programme will gather people’s views and experiences, both in person and online. The first part of this work is an online survey for people who have been diagnosed with dementia in the past 2 years (since November 2014), and people who provide unpaid care for them. The survey, which is open until 31 January 2017, asks about people’s experiences of dementia diagnosis, support and awareness. It has been produced in consultation with people with dementia, their carers and our partner organisations.

As well as the online survey, local dementia groups will be able to discuss the questions in groups or one to one and feed the results back to the department. The DOH have published guidance on holding discussions with people with dementia and carers and will be organising specific discussion groups with traditionally hard to reach communities.  The programme’s scope will cover the 5 main themes in the Dementia Challenge 2020 Implementation Plan:

  • health and care
  • risk reduction
  • dementia awareness and social action
  • research
  • continuing the UK’s global leadership role

The output from this programme will inform the formal review of the Implementation Plan in 2018.